Jun 17th, 2005 - Subscribe
Keywords: body,numbness,thyroid,hypothyroid,support,help,full,body
Update: February 7th 2008
Hi Everyone,
Due to the popularity of this blog I felt it to be important to give an update. I eventually went to a doctor and found out I had an Underactive Thyroid (Hypothyroid) problem. Due to the history in my family that was the first thing we checked and it fixed my whole numbness issue. This blog will stay active just remember this, see a doctor, no matter what. It will help the process go along, let them know your symptoms and your family's medical history, even if it is 1-2 generations down the line. Please do not hesitate to do this as some of the problems are very serious in nature. This site can be a support barrier to you, but ultimately a test can help you identify the problem.
I appreciate all the help and support everyone is giving each other and I hope it keeps up as it seems a lot of people enjoy it. Thanks for coming and here was my original post:
End of Update
For the past 6 months I have had numbness in my body off and on. The first occurance it was in my left side of my body, only my left side and it was most extreme in the lower legs. It lasted for about a week or 2. About a month later give or take it hit again on my right side this time. Same symptoms lasted a week or so. About 2 months later it hit in my left side again, same symptoms. Just recently it hit me last saturday. This one is very extreme it started out in my feet, I thought it was from recently wearing sandals. But as it kept going it moved and now is from my torso down, even in my hands. My legs are the most extreme it is like they are in the sleep mode, with no sight of waking up.
I went to a doctor did some blood work incase it was a thyroid problem, but he has never heard of it like this. I am waiting for results. I tried some IB Profen incase it was something enflamed. That did not good. I also tried an exedrin incase that did anything, nothing again. I have tried stretching, working out, running, cycling, and still nothing. This is weirding me out etc. I have not been under any stress lately, and never had stroke or any other major problems. I have low blood pressure and Cholesterol (I am 20 years old)
I am just wondering if there is something someone knows that will help this. Or even to prevent it again. It has been about a week I have had this and it is very annoying. I would appreciate ANY information on this, or maybe someone having same symptoms to compare notes with.
I do not wear glasses, my vision is still the same. No headaches or backaches or pains anywhere but my upper chest which has been hurting since the numbness started. But it is my upper chest no where near the lungs or heart. I worked out on Tuesday doing some lifting (it has been a while since i lifted) and that did not seem to help or provoke it any. I have been eating healthier than I have in a long time. The numbness started before the workout and the change in my food habits.
But as of right now my torso, right and left hands, and below my waist is "numb" with that tingling sensation. Another note, I do not have any weakness associated with this. I am still as strong as I was before the numbness started. My reflexs are the same also.
Any comments/suggestions are welcomed. Thank you.
--FrosT

Comments:
I have the right side, leg and torso skin numb. I think is because I ate canned fish and peeanuts. I wait it to go away.
In the mean time I do my gymnastic exercises daily.
I think the food intoxication affected the periferic blood vessels. I don't think there is any nerve problem. The problems is with the doctors who know almost nothing.
how is it going, these days?

Since last week my left side has been numb but it doesn't hurt it just feels funny.I'll give it a few weeks and see what happens.Talk to you all later. garyneysmith@rogers.com

frost
on May 31st, 2006
I am doing great since they diagnosed me with my Hypothyroidism and I been taking my pills. No more numb spells!
--FrosT

anonymous
on June 03rd, 2006
I have a doctor's appointment on Monday and we will see what happens

anonymous
on June 13th, 2006
It's me the doctor told me the reason why my side is numb is because l sleep on my stomach. Still doesn't hurt but we will see in a couple of weeks. Gary

anonymous
on June 29th, 2006
Woke up with numbness on the right side of my face. 2 days later moved down my right arm. This morning it has move to my left side of the face, left arm and left leg. It feels so wierd. I am perfectly healthy. I am a 42 year old female.

anonymous
on July 14th, 2006
Two days ago started feeling numbness on left side of face, including gums, cheek area going up to the eyes. Doctor told me it might be allergy related or tooth. This morning woke up feeling numb in fingertips and lower calves.

anonymous
on July 16th, 2006
I HAVE A TINGLING AND NUMB SENSATION IN MY LEFT ARM AND THEN IN MY LEG.. I HAVE HAD THEM FALL ASLEEP IN THE PAST BUT NOTHING LIKE THIS BEFORE.. I AM SCARED,,COULD THIS BE FOOD POISONING OR SOMETHING WRONG WITH BLOOD FLOW?
I AM A 36 YEAR OLD FEMALE WITH LOW BLOOD PRESSURE -LOW CHOLESTEROL- I DO NOT THINK I HAVE ANY HEALTH PROBLEMS.. THE OTHER DAY I HAD A SEVERE HEADACHE IN THE BACK OF MY NECK -AND I FELT LIKE I WAS GOING TO BE ILL, THEN THE NEXT DAY I HAD AN UPSET STOMACH WITH MY UPPER CHEST WAS VERY TIGHT, IT COMES AND GOES..ANY NEWS ON WHAT THIS COULD BE?

frost
on July 16th, 2006
Go see a doctor.
--FrosT

anonymous
on July 18th, 2006
I have numbness on the left side of my torso. It has moved down the front of my leg and now down my shin. I have had it for about 5 weeks. Last year I had it down my right side - saw the doctor who thought it was going to turn into shingles but it didn't. I will go back to the docs to see what they say this time.

anonymous
on July 19th, 2006
The right side of my body is suddenly numb from my abdomen down to my little toes. All on the right side. It feels tingly like when your leg has fallen asleep and you move it.
--Marg

anonymous
on July 25th, 2006
The numbness around around my mouth,forehead and cheeks started after a bout of food poisoning where by blood pressure was very low.My thinking ability was affected.One month later there is still numbness on the left side of my face and tingling/weakness in my left arm.I feel like I am favouring my left side although my mind has cleared 75%.MRI showed normal-with a Mega cisterna Magna(within normal)

anonymous
on July 27th, 2006
I am a 38 yeard old, I woke up one night with numbness and tingling on my fingers, 15 minutes later went to my arms and left side of the face, my husband took me to ER everything came find, am still having the episodes. It doesn't hurt jsut feel wierd like ants and my muscle feels tight.

anonymous
on July 29th, 2006
All of you tell your stories but did anyone already go to the doc and what did he/she say? could it be fatal like loosing a leg or arm or could it wait a week or two until the doc appointment?

jim
on July 29th, 2006
Mine was due to thyroid.
--Jim

anonymous
on August 03rd, 2006
I have been having headaches that have not gone away for weeks, woke up Monday and left side of face is numb. Had many test and they all come up negative doctors are no help so far.

anonymous
on August 12th, 2006
I've been having a numb feeling in the left side of my throat. I'm going to an open mri on monday. Doc thinks its a pinch nerve in my neck.

anonymous
on August 23rd, 2006
I was food poisoned almost three weeks ago, my stomach has been upset ever since and i still feel sick and throw up some times. Today, however, i suddenly felt my hand go numb, and within minutes my hand, my arm, my shoulder, my spine went numb and within two hours it went down my leg covering the entire left side of my body. it tingles sometimes aswell, i have no idea whats going on but its really frightning me!! I also feel like I have a hard time breathing at times. Im a perfectly healthy 17year old girl (part from the food poisoning i had). Help!?

frost
on August 23rd, 2006
Food poisoning does weird stuff for you. I once had problems for 2 months due to eating raw chicken from a resturant. I say give it some time and it should work itself out. If not talk with a doctor.
--FrosT

anonymous
on August 25th, 2006
It's more than 3 months that I feel a pain in my cheeks. I went to dentist, but nothing is wrong with my teeth. Today I am feeling numb in my legs. I also have a weired feeling in my brain. I'm a 26 year-old girl with no specific health problem. But I was under stress during the last month. I think I should see a doctor.

anonymous
on September 02nd, 2006
It's been about 5 years since my problem started. I have numbness over my left and right cheek area, my gums are swollen, and my legs feel like they have thousands of ants crawling all over them. One doctor said that it could be stress related, another thought lupus. A friend told me that it could be a nerve disorder, but which one?

anonymous
on September 02nd, 2006
Don't know much about this condition but have heard about a condition that fits these descriptions, guillain barre syndrome.Check it out. Dr J Perumal(Dentist SA)

anonymous
on September 08th, 2006
I WOKE UP ONE NIGHT ABOUT TWO WEEKS AGO, MY LIPS WERE NUMB THEN MY LEFT SIDE OF MY FACE, ARM AND LEG...IT WENT AWAY BUT THE NEXT DAY AT WORK MY FACE WENT NUMB...MY LEFT EYE LID SEEMED TO LOWER THAN THE OTHER..I HAVE BEEN UNDER A LOT OF STRESS BUT THIS IS USUAL FOR ME..I AM 28 YEAR OLD FEMALE IN GREAT HEALTH..I WENT TO THE ER THEY DID CAT SCAN AND BLOOD WORK ALL CAME OUT NORMAL...I WAS SUPPOSE TO GO TO THE DOCTOR BUT I DON'T WANT TO WASTE CO-PAY SINCE EVERYTIME I GO TO THE DOCTOR THEY SAY IT'S STRESS..I HAVE HAD IN THE PAST A WEIRD PAIN IN MY CHEST..THEY SAY MAY BE MUSCULAR BUT I DOUBT IT SINCE THE ONLY THING I DO PHYSICALLY WITH MY ARMS AND CHEST IS PICK UP MY KIDS (CARRY THEM) DAILY...NOT SURE WHAT I SHOULD DO..I HAVE HEADACHES NECK PAIN AND I HAVE HAD CARPAL TUNNEL IN BOTH HANDS BUT THIS IS A DIFFERENT I RECENTLY ABOUT A MONTH AGO HAD LASIK EYE SURGERY, I STILL HAVE NUMBNESS BUT ITS PRETTY MUCH ALL OVER COMES AND GOES..I HAVE BEEN DRIVING IN BUMBER TO BUMBER TRAFFIC FOR LONGER PERIODS OF TIME..IS THAT IT?

anonymous
on September 11th, 2006
I am currently experiencing tingling/numbness from my chest down to my stomach to my legs and feet, and also my fingers. I too thought it was because of a pair of highly elevated sandals I just recently bought. The first day I wore them is when I started feeling the tingling/numbness in my feet that moved all the way up to my chest and into my fingers.

anonymous
on September 12th, 2006
I have had numbness off and on thoughout my whole body now for about 2 months now. The first time i experienced it I had tried weed. I thought it was a side effect from that. It would go away a couple hours later. I tried it again and would get the same effect from smoking it but would wear off hours later. Then the last time i tired it, the effects didnt wear off for over a week. My whole body was numb/tingly including my tongue. It went away but now i seem to still feel the numb tingly feeling every so often. it would usually last a couple hours and i would usually get it when i would lay down. I have it again and now its been a couple days. I dont know what to do. What is this? Could i have caused some nerve damage?

anonymous
on September 13th, 2006
Hi, not sure how current this blog is. Firstly everyone I recommend go to your doctor. I have just been to my neurologist about body numbness mostly on the left side of my body, some concentration problems after two distict episodes. I am having an MRI whic is to look for MS or any other brain abnormailities "fuzzy areas" as my doctor put it. I am only 21 years of age, female. But yes MS concurrs with alot of your symptoms from what i have read. hypothyroidism actually seems to also make sense to me with some of its syptoms. Specifically an odd ting i have noticed about myself that i have very brittle nails which goes with it / quite dry hair especially for someone in their 20s. So im hoping i have this rather than MS. But either way its best to simply get to your doctors and get tested. ASAP as there are SO many conditions that exist. Rule out MS which I haven't done yet. My doctor said even if i have it, although he thinks i dont believe him, things can definately be ok! So get down to your doctors guys. Frost my question to you is did they test you for MS aswell? Im surprised they went straight for hypothyroidism. I really hope this is what i have.

anonymous
on September 13th, 2006
Oh and the weed question. I wonder? i mean i know alot of stonners but have not heard of this happening. I guess the thing is that weed is a stimulant for the brain and maybe it triggered something, although i doubt it would have altered too much? I have heard of weed causing scitophrenia however it is spelt. Again go to your doctor and tell them you smoked weed as well. It could be something underlying that you didn't know was there. But tel them teh truth so they have all the facts they wont kill you im sure. Your doctor probably smoked weed in college anyway haha.

frost
on September 13th, 2006
Weed effects people differently, I would highly suggest stop smoking weed if you expierence that type of crap after smoking it.
Weed is meant for some people and not for others, obviously you are not one it was meant for.
--FrosT

anonymous
on September 13th, 2006
Hi Frost, i just was at my doctor today and they are testing me for MS but they have not done anything for Hypothyroidism... is this done via bloodtest? And is it done by a regular gp?

anonymous
on September 15th, 2006
Hello,
I am 40 years old. Last week I woke up and my right side of my head, neck, and ear was numb. I had itching in my ear and head and it hurt to touch it. The numbness is now on the entire right side of my body. My right arm and foot feels like it feel asleep. They feel real heavy. I went to the ER and had an MRI of the brain, neck and ears and all was normal. The CT scan of the head was normal. Blood normal. White count a little high. Doctors don't know what it is. The ENT doctor said I could have a virus in the ear, but that would not explain the numbness down the whole right side of my body. Last night I woke up and my right foot felt 6 times its size and really asleep. I am in need of answers since I have two babies to take care of. Help please.

anonymous
on September 16th, 2006
If not MS maybe ask about Hypothyroidism?

anonymous
on September 22nd, 2006
Hi i see im not alone on this. I've been suffering with numbness on my tip of my right fingers for 1 month already
i went to my pcp and he told me was due to me typing so much at work. well i lwft at tht but the numbeness continues HELP.

frost
on September 22nd, 2006
NOTE:
Please Direct all serious issues to a doctor. This was simply a blog on symptoms of what I had that turned out to by Hypohyroidism. You will not get a response of what your condition is from here.
--FrosT

anonymous
on September 30th, 2006
I have the exact same symptoms of numbness as you describe, from chest down to toes and my fingers ... and I have MS. I think it is caused by a lesion on the spinal column. Your doctor should have heard of this pattern of numbness in neurology classes !

anonymous
on September 30th, 2006
I didn't mean my MS is caused by the lesion being on my spinal column, I meant the symptoms, the location of the numbness... Different lesions on the brain or spine cause different effects to different areas, could effect your eyes, your cognitive reasoning, balance, etc,etc....

anonymous
on October 04th, 2006
About 8 years ago I experienced this "numbness" you are all talking about. I remember sitting at the dinner table with family and my foot "fell asleep". The sensation ran all the way up the left side of my body all the way into my face. Once the tingling sensation stopped about 30 mins later, I had an excruciating headache for the next 2 days and the left side felt weaker. This numbing sensation/headache thing happened 2 more times within the following month. I wwent to a nuerologist and he did all these tests, performed a cat scan, everything. He said I was fine, and that I was suffering from migraine "aura's". Whatever the hell that means, he told me if it ever happened again to call him, but 8 yrs later it hasn't. I know one day it will, but I still don't knwo what the hell it was. I am so curious to this day.

anonymous
on October 05th, 2006
I'm a 37 year old male. Had a stroke 2 years ago (different story, had a clot and took out my right side, but with therapy I'm 99% back...) SO...2 weeks ago, I was feeling 'lightheaded' or so I thought, numbness started on left side LIPS, then left arm,leg...kinda a whoosh or swell of numbness...transported to ER since I thought 'gee whiz...another stroke...great!!!'. MRI, CT, heart tests and blood test ensued, no sign of new stroke event (good), I have been on Coumiden for the past 2 years, and my blood was in the proper range. 2 weeks later I still have some numbness, pins and needles on my left side fingers and lip, cheek...and about 3-6 times a DAY I get the surging,woosh of numbness on that side that lasts for 5-30 seconds, freaks me out, but seems OK at this time. Another followup with my neurolgist next week to try to figure this stupid thing out...(don't think NOW that I was lightheaded at the first episode, but rather the numbness on my face made me feel I was lightheaded due to the sensation...) NO loss of motor skills, but when I go through these swells...arm/leg get a little goofy till it settles down (like its' really,really asleep...). Other thing, at the ER, my potassium was LOW , which is a bad thing (so is too much)so they gave me some 'horse pills' to fix that at the time. Still monitoring. Will post back in the next weeks if I find anything out..just freaked out right now though...
(FYI - the numbness,tingling,lightheadedness, dizzyness, sudden severe headache, confusion, loss of motor functions, especially on ONE side of the body are SIGNS of a STROKE or TIA...don't mess around if you see some signs, SEEK HELP ASAP - seriously !!!)
-FreakOUT

anonymous
on October 09th, 2006
I was at work when I suddenly got really confused. I stopped what I was doing and a few seconds later my legs went numb and my right leg was swollen. I called my doctor and he was out of his office I was told to go to the emergeny room where they tested me for blood clots in my leg since I am on birth control. Turns out, no blod clots, they next day i went to my doctor. I told him what had happend and he ask me about my background and I come from Germain backgrounds, and MS is commen in females with german background, he ask me if i had vision problems along with my confusion and motor skill problems. I did, the Saturday before this I had blurred vision and went to the eye doctor. Doctor said I have 3 out of 4 signs of MS. Went and had a MRI on my brain, and I got a call from a nurse sayin i needed to go to a specialist for MS, So i thought i had MS up until today I went to my specialist visit and this doctor made me move my arms here and there then told me i was fine?!?! Im not fine..lastnight my head went numb...my vision is blurred...my legs still go numb and the right one still swells. I stopped birth control, Im 19 years old, a female, I exercie and eat right. Any ideas anyone?

anonymous
on October 25th, 2006
Reading all of these responses make me want to cry. I can't believe there are so many of us out there with the sane symptoms. I am a 38 year woman in what I believe to be good health. I work out a lot, I am very active and I do my best to eat healthy. I take pride in doing the best I can to be the best I can be... yet, the last 3 weeks have been absolute hell. I've been experiencing numbess on the left side of my face,my left arm and at times there is pain on the top of my head. The pain is always on the left side. The numb senstaion is only on the left side. I am sooo scared. When I was six years old I experienced the same thing but I would have episodes where i would lose all ability to walk. I was basically paralyzed on the left side of my body. These episodes went on for weeks, I never told my parents. One day my mother came to pick me up early from school just at the time I was having one of my episodes. SHe asked me to stand up and I told her I couldn't walk. ANd I couldnt walk. They rushed me to the emergency room where they did several test and they couldn't figure out what was wrong. TRhey took me to a neurologist who finally told them I had a type of epileptical seizure. With in 3 to 4 weeks I was able to walk. The only problem I have now is the lack of sensation on my left foot. My toes are completely paralyzed. I am now experiencing he same symptoms to some extent and I am scared to death. I still remember being in a wheel chair and I don't want tht to happen to me again. I have an appointment with a neurologist on the 6th of November wish me luck. I hope its stress or a thyroid problem. Good luck to everyone on here. Just seeing how many people out there have the same symptoms scares.

anonymous
on October 26th, 2006
I go through the same thing. I am 17 years old. I've been numb even before I had turned 17. An example for how I feel when my whole body goes numb, is like when your foot is asleep, and everything you touch feels like you're going through stuff like a ghost unless you force your hand or foot against that object. It stays for days or weeks at a time. My mom freaks about it, because she doe not know what it could be. I will be honest though, the first time the numbness started I had gotten high the night before, and I got up the next morning numb. I haven't done anything for it or to try and prevent it, but I know I should.
And here for a month I've getting real bad headaches, and they will not go away, nothing tylenol won't even help me. Their sever...I just go to sleep when I have them usually, that doesnt work, and the headaches are so bad I can't sleep or even get comfurtable. I went and got my eyes checked out last week. && prescribed me glasses, and I have yet to get them, and we will see if they will prevent the headaches when I'm readying and at the computer. Because I'm at the computer for 8-10 hrs. daily. At school and home...soo they think thats whats doing it...and so do I. But today I've been getting hotflashes and dizzy.
But I had no idea there were other people out there with the same numbbneess as me. Mine just hit the whole body at one time.
If you would like to email me, my email is
oxogremlinoxo@yahoo.com

frost
on October 26th, 2006
Wow, I never knew this blog would get such a response.
Here is an update on me, I have not been numb in over a year. The thyroid seemed to be the kicker for me. I am extremely happy I went and had my blood tested for a thyroid problem. I have been taking the bills for over a year now and feel alot better than I used to. Although when I mess up my pills I often get those feelings back.
Right now my goal is to keep the pill up and try and lose the 30+lbs I put on from my thyroid problem. My goal weight is 155lbs.
--FrosT

anonymous
on November 06th, 2006
It is 11/05/06. I'm 33 yrs old as of 9/9 My numbness started 10/18/06 with my left foot and leg so cold woke me up out my sleep. i ran scolding hot water in my left leg and didn't feel no cold or hot. I thought that I thuoght that it was just sleep for a while. put no change so I went to ER. They did EKG and Few EXRAYS. they told me to report to my locale clinic in 2 days for a follow up but it was on a saturday so i would have to do a walk-in. So I did and i did and they didn't do anything else but give me an appointment for 10 days later to do blood work. The next Day after the 1st clinic visit the numbness covered left foot, leg, & torsoe. The next day it got my left army too and feel like my hand is pulling on my heart. by know the whole left side side my body is feeling cold or fake to feeling on my left side. 10 days is now up and it's time for my appoiont ment.the day i wake up to a frost bit feeling over my complete leftside except neck & haed.the day after this i go back to ER For a 2nd time because it has spread up my left side from foot and leg. not only is it frost bitten cold feeling my hand forarm biscept heart area knee and foot feels like it is on fire over an opened flame boy does it burn and freeking cold at the same time this is some crazy feeling stuff. now they do another EKG< catscan, more x-Rays, and more blood work @ ER. clesterols good,b-pressure good, diabetis no, ms no. they thinkk that it si a pinch nerve, but it also can be a blood clot. i need a MRI a blood clot is a good possibility because during last years evacution from RITA i drove 28 Hours to get to San Antonio 22 Hrs with standing strecthing walking or moving bumper to bumper traffic. in the morninging i'm going back to ER. to see if i can get to see the nerologist or an MRI or both becuase this morning i woke up and it has my neck and throat on the left all thats left is my ear, Eye, & BRAIN ! any info on this subject please e-mail me @ pmd2k@sbcglobal.net

anonymous
on November 08th, 2006
Hi, I am a 43 year old woman and I have had numbness and tingleness on the left side of my body from head to foot on and off for over a year. I have had a catscan, MRI, and blood tests ordered by my neurologist with normal results. I am going to have another MRI this friday. Its pretty annoying and frustrating to not know what is causing these symtoms and if it is leading to something more serious. I pray that it is something minor and that the doctors can find the right answers.

anonymous
on November 10th, 2006
While sorry to hear about your problems, I have to admit that its somewhat comforting to realise others have the same worry. Again, as with many of you, I thought I was reasonably healthy but with tingling and numbness hitting left side of face and left foot strongly recently. This first occured about 5 years ago and seemed to be triggered by a period of very good fun, socialising and heavy drinking!!! Took a few months to wear off. This time, with 2 small kids and a stressful job in front of laptop 12 hours a day, I took up coffee drinking as a little luxury. I'm blaming that for the numbness attacks, although my mam has huge problems with thyroid and I believe it is can be genetic. (She also used complain about this facial numbness and tingling ) Still, the worst bit is the sensation that I'm having a stroke, the panic that sets in exacerbates the feeling. Its like I'm going crazy; when it subsides I feel silly about it all. Not as silly as I feel for not going to the doctor. Someday soon, it just might scare me enough to go!!!
I'll report back if I do. Damo.

anonymous
on November 11th, 2006
If you are drinking diet pop - stop - I'll post some interesting websites about aspartame next week. ALSO - have your dr. ck for Vit. B-12 deficiency!!

anonymous
on November 12th, 2006
i'm having the same side effect that the person who smoked weed had. The nimbness hasn't gone away and i smoked for the first time on Thursday and it's been over 4 days now. I've been drinking alot of water to get it out of my system and it doesn't seem to work. What should I do?

anonymous
on November 13th, 2006
MeToo

anonymous
on November 13th, 2006
Sorry about MeToo. I have not done this before. I am having a lot of the same symtoms as many of you, and I have looked on other blogs as well. It seems that very few people have gotten any answers from doctors. This fact - that the doctors don't know what is going on with this tingling sensation, numbness and pain, has encourgaged me not to seek medical advice. I also don't have insurance and can not afford a doctor.
My discomfort started with what seemed to be my heart beating really fast. Then my left arm started going to sleep when I slept. Now several months later, my entire left side, from big toe to jaw tingles and feels electified all of the time. My upper gums feel numb quite often too. At the moment that I am typing this, I have a headache and my left arm and chest are hurting.
This is not the first time. This happens from time to time, but it is scarey. It feels like what I would think a heart attack or stroke would feel like.
What I want to see here is anyone who has found an asnwer to there problem. Everyone discribes their pain, but if anyone finds the root they are not getting back. I will check out the website about aspartame if it is posted. Thanks.

frost
on November 13th, 2006
I know aspertame has known to cause many symptoms in a few people. It is relatively safe except for the few people who encounter problems with it. Some people found that it gave the mstroke like symptoms, numbness and dizzyness. Other people expierence no problems.
I have had no problems with Diet sodas, although I do not drink an excessive amount of soda.
At anyrate Aspartame is bad for some people, but on the other side regular soda isn't a walk in the park either =) Best bet, stop drinking soda all together and drink more juices and water.
--FrosT

anonymous
on November 17th, 2006
I have a lot of the symptoms that the postings above mention. In April of this year it started in my right leg (on the back of my thigh). At the time I was 51 years old and just entering menopause. Over the next few weeks, it progressed into my right arm and right side of my face and neck. The center part of the tip of my tongue is also numb. Since April I have not had a day where I do not have some area numb. It is only on the skin and not a deep numbness. It kind of feels like Novocaine is wearing off (like when you visit the dentist). I have had CT Scan, MRI on brain, cervical spine and lumbar spine. I'm currently going to UCLA Neurologist to have more nerve testing done. They have ruled out brain tumor, stroke and MS. I also went on my own to a physical therapist who is trying to help relieve the symptoms with massage, heat, cold, stretching, etc. I would love to hear from ANYONE who has had some luck resolving similar symptoms.

anonymous
on December 11th, 2006
I am a 25 year old female who has had similar symptoms to those listed on this site, but I haven't gone to the doctor yet. My numbness started in my arm, then I noticed it in my leg and the left side of my face (all of this is on the left side). My husband is a PhD in Virology and Immunology, but that doesn't help me at all. He definitely wanted me to go to the doctor as soon as possible, because it could be something serious. I have only had these symptoms for 3-4 days, and there is no way that I would wait as long as some of those in this post have waited to go to the doctor. Even if it does turn out to be a pinched nerve, it is worth the co-pay to have assurance that it isn't something serious like MS.

adub
on December 17th, 2006
I am a 28 year old male who is going through alot of the symptoms others on here is talking about. I got in a minor car wreck that i thought really wasn't nothing to worry about. since then I have very bad pain in the back of my neck and head. I get these very weird feeling thorough out my head. This muscle in the back of my head called the rectus capitis posterior keeps swelling.. I'm sure my problem is starting from something in my neck I get very numb in my left arm,hand, left top chest where my heart is and back and left side of my face. My digestive system is also giving my problems now i spit up a lot of my food (pieces of it)I also seems like I can hear noises in my neck when i move my head. The pain is now traveling down my back. It hurts to move a certin way. I've gotting cat scan, mri and blood work everything came back fine... This is now starting to worry me because it seems to be getting wrost. If anyone heard of this before are know what this could be please comment...i feel like i'm at my ends rope.

anonymous
on February 06th, 2007
well i am 20 year old female. About a day ago I started feeling numbness on my left side and slowly it is transfering to my right side. I dont know if I should be worried. If anyone believes that I should be worried, please say so...

anonymous
on February 09th, 2007
I am male, 43 years old, and I have had intermittent numbness on my left side (face, arm leg, foot) for the past few days. I had this same problem 20 months ago. I stayed in the hospital for three days and had an extensive set of tests, including MRIs, CAT scans, blood tests, EEGs, everything they could think of. Everything came back normal. Doc said maybe migraine aura. The problems went away until a few days ago. I wonder if it could have anything to do with my weight lifting. I leg press very heavy weights using a leg press machine, with my back pressing against the seatback of the machine. I stopped doing this exercise after my first "attack" 20 months ago, then, last week, I did the exercise again for the first time. Has anyone else seen this type of relationship with their symptoms?

anonymous
on February 14th, 2007
I felt numbness on the left side of my body for about a week. So I found this forum and was relieved to know that a lot of people are experiencing the same symptoms but their scan results were clean. And most of you are experiencing this numbness on the left side as well, which is suspicious. I tried reducing pressure on the left side of my body, for example, I slept on my right side, stopped crossing my legs, took more breaks at work. And that seemed to have gotten rid of the numbness for me. So I think what caused the numbness was prolonged periods of pressure on my left body, which seemed to have affected my nerves on the left side.

anonymous
on February 18th, 2007
everyone go get checked for ms,and have your b12 levels checked asasp,also lyme disease blood work.. lupus and def MS ,a spinal tap will tell all.

jonsmom
on February 28th, 2007
I have been reading the messages on this blog. What I have been experiencing is left arm coldness, chest pain and numbness. I actually ended up in the ER a couple of days ago, had a cardiak corkup and blood. The only thing they found was a high result in something that indicates a blood clot. I had a chest CT done which was negative. The final dx was chest wall pain which I have had frequently in the past. Now I am having left arm numbness, coldness, tingling in left fingers. I have been under a lot of stress lately but this is becoming ridiculous. I am embarassed to go a doctor thinking the only they will tell me (again) is I am fine and its just chest wall pain.

anonymous
on March 01st, 2007
Hi everyone. I'm a 28 yr old female with so many of the same symptoms as you guys. My whole upper and mid back has been numb for about 8 months and in December of 06 my left neck starting hurting. Well, Jan 07 both sides of my neck starting to hurt and the pain spread down the upper part of my back and chest. My whole left side of my face and body is numb, tingly, prickly and burning sensation off and on. My left kidney area kills and now my whole right side is becoming the same way as my left. I've had blood work, ct, 2 sets of mri's w/ wnd w/o dye. The docs and neurologist pin points it to MS. Oh by the way, my blood work came out normal and same with my emg. I have to wait a little longer for a spinal tap I was told. I asked them if it was fibromyalgia and they said my symptoms didn't make anything for fibromyalgia. My thyroid is ok too. I wish everyone the best of luck. Keep pushing your doctor(s), I know I will until they give me a tap and tell me what level I'm at. Take care.

anonymous
on March 02nd, 2007
i have ms

all the tests results are back, how do u live with that answer .. confused

anonymous
on March 22nd, 2007
Hi everyone. I have had this tingly sensation as well. It started in my upper back. I thought it was a pinched nerve. A week before I fell on my butt on some ice. But I seemed to have been fine, just alittle sore. But when this tingly feeling came in my back I just associated it with the falling. Well I figured it would go away on its own. As days go by the numbness/tingly feeling started going into my right leg, then more days pass they go into my arms, hands, face, head, everywhere! Its like little pins pricking at you. It makes you feel itchy. But it is not a rash.
I told my mom sister and dad and they all think im crazy. I thought maybe it was the new allergy medicine I was taking, so I got off of it, and I still have the numbness and tingle feeling. Other problems I have been having is constipation, dry mouth, and I missed a period, which I never do.
Please help, Im getting scared. I dont have any insurance, so if I finally go somewhere to get checked out I need to go to the right place. I cant go to doctor to doctor. I dont want to go to my family doctor because he writes an antibiotic for everything. Hes a quack and just doesn't seem to care anymore.

anonymous
on March 23rd, 2007
For as long as I can remember, I would get numb on the left side of my body. Lately I have been getting numb when I am laying down on my right side, but mine gets so bad that I can not stay still. As a matter of fact, all day my left shoulder has been tingling and my left lower back. It is very aggrivating. I am gonna go get it checked out tomorrow and hopefully everything will be okay...as for right now any otc meds anyone suggests I use???

anonymous
on April 07th, 2007
Hello im 29 a mother of four and my right side goes numb ive been through so many tests in the past year dont know what to do any answers deebeals@yahoo.com

anonymous
on April 09th, 2007
Hi. Im a 25 year old female, and I have been reading some of the comments on here.. And wondered if you could help me with mine. I have numbness in my legs and through my arms and hands. It feels like they are sleeping and its getting hard to feel when I touch things. My dog rubbed up against my leg and I coulnt even feel it. I get sever headachs, and they last for days at a time. I dont know what to do, and everyone I talk to about this thinks Im just scared for nothing. But its really starting to freak me out. The numbness has lasted now for about week and sometimes it feels like its going anyway, but it hsnt yet. What do I do now?

anonymous
on April 14th, 2007
I thought I was the only one with theses symptoms. The first time I experienced the numbness was smoking weed. Then it went away. I have not smoked weed in years, but I'm now experiencing that same numbness all over my body, like one blogger said it feels like you're going through stuff like a ghost unless you force your hand or foot against that object. It stays for days or weeks at a time. I have not been to my Dr. yet, but I'm going to make an appt. If anyone has any information please e-mail me at icy1999@aol.com . THANKS

anonymous
on April 20th, 2007
I would check the MS society website and see what you find out there. I am probable MS and going thru my sedond episode as of yesterday morning, so it's been a lil over 24 hours. I am hoping it shows up in my second MRI tomorrow so that I can get treatment, the earlier the better. I would see a neurologist if you can.
Jenn

anonymous
on April 20th, 2007
BTW, MS is not a death sentence. Be aware that most people with it have normal lifespans and only have disability as it progresses years later. You can still have a good life, especially with medical treatment today that can slow down progression. Do not be afraid if you do have it. Be informed. Don't obsess over the MS society pages. REad them then close them. Then start lookign up personal MS stories on google and even healing MS. You are not a victim, you have power. I would urge anyone with MS to reasarch amalgam fillings if you have any. tehy are 50% mercury, which is toxic. Lots of controversey here. I am saving up $ to have my 'silver" or should I say "mercury" fillings out by a biological dentist and replaced by composite. As long as you are proactive in your health, you have power.
Jenn

anonymous
on April 25th, 2007
I have been experiencing numbess on my left side it seem to be spreading. MRI normal. Am looking for a different cause. Anyone here with these symptoms use Retin-A?

anonymous
on April 26th, 2007
i have been experiencing numbness on my right leg... when i touch it it feels like it's falling asleep. Now 2 weeks later my whole leg just hurts very lazy feeling all over and have a small limp. What is wrong? helllllllp

anonymous
on April 28th, 2007
wow! my husband has been suffering the same symptoms as all you guys. I can't believe there are so many people out there who have the same thing, and feel the same. My husband feels quite alone in his "mystery illness". mri, cat scans and neurologists cannot give us any answers axcept, wait and see if you become blind, then it is probably MS. Great. I am also amazed that this blog has been going for so long! Just goes to show that doctors know nothin at all.
Tracy, Australia

anonymous
on April 29th, 2007
I am a 25yo and its been 2yrs since I have had numbness throughout my whole body, I have seen several neurologists and they are not sure what is it. I find going to the gym on the tredmill makes me feel better, I was in a car accident back in 2003 and Im thinking its something with my spinal cord but the doctors have not seen anything in the MRIs I have had of my c-spine and brain. Ive gone to several top rated doctors in the Albany, NY area and they just cant find an answer. You just have to stay strong and dont let anything bring you down, even if you have MS, my aunt was diagnosed with it last year. I wish you all luck with the doctors you seen, I have kinda given up on them and have spent a lot of my work time going to see doctors that dont know whats going on.

Hi I am a 43 year old female who developed numbess in body about a month ago. Statred in both feet and moved up left leg and onto torso front and back. It then over a few days moved into right leg and intensified on torso. Ity made its way do my left hand and arm and then the right side almost mimicking the left side. I spent a week in hospital undergoing blood tests and a CT head which was inconclusive. Also had nerve conduction studies to rule out Guillian Barre Syndrome. Had the MRI of Head and cervical spine a few days ago and it has revealed inflammatory changed in brain and spinal cord. I see the neurologist tomorrow. The sensations have changed over the weeks to sometimes being sharp and needle like especially in hands and areas on the thighs. Up until this event 4 weeks ago i have been very healthy and working full time. It has changed my life dramatically and i am hoping to find some answers tomorrow and pray there is a treatment for whatever has hijacked my body .

My Mom has been experiencing symptoms of numbness on one side or her face, the top of her head, and throughout her legs. She said it was tingling and numbness. I'm getting really upset because she has to work and take care of our family while she is falling apart and very sick. They keep talking about Lupus and MS. She had a MAJOR car accident that caused brain injuries in 1989. She doesn't understand how that can affect her now. And, they also found lesions on her back and on her brain. I'm so upset and I wish her doctor would do something. Doctors don't do anything. My Sister has Lupus and my Dad and I have Crohns disease, and possibly my other sister. Our whole family just needs to be prayed for.
If you have any information or diseases that you can tell me about please email me,
blndexosweetie13@aim.com.
Thank you and any slight bit of help will mean the world to me.

It sounds like several of you might want to check into Multiple Sclerosis. Several of the symptoms that a lot of you have can be from MS or Lupus.

Wow I am sorta glad I found this site although it isnt helping solve the mystery at least I see others are having the same problems. Mine started about 6 years ago I had just got laid off from my job and got a headache that diddnt go away. A couple weeks later I started getting a bit numb in my face on the left side. I went to ER but CT and blood test came up with nothing. They figured it was probably stress and sent me home. A year or so later the numbness became more persistant and I went back in. This time I did the full deal.. CT, MRI for brain and neck, that thing where they shock your arm (i forget what its called) anyway all back negative. Doctor decides its either migrane or all in my mind. They send me home again. Now after getting used to the symptoms coming and going I noticed the past week or so it is getting worse or bothering me more anyway. I feel week in my left side as well as the tingling numb feelings. I now have no insurance so I dont want another trip to ER for nothing. I just dont know what to do. I am trying to tough it out until fall when I will get insurance again from my job but it is becoming unbearable not knowing what the heck is going on. To the person who excercises I also seem to get some relif after strenuous activity and sometimes eating a meal. I do drink lots of diet soda so I am going to cut that out totally as suggested and will try and get some B12. If I find a solution I will post. It is bothering me so much tonight I cannot sleep.

Whole body numbness.. This is something that my wife calls a pins and needles sensation. It has happen twice in the past two years. the first time it happened, it was gradually. Started in her legs and moved to her hands and arms. It eventually stopped at her neck, with some around her ears. We had all of the tests performed. CT, MRI or head and Spine. Spinal Tap and blood work up and down. To our relief, nothing was found. However, their was still a problem. This problem went away and within a month, it was gone. Since then, we have had a baby and almost two years has past. Last Sunday, it happened again. This time it was immediate. She woke up and had all of the same symptoms but this time they were also in her neck and head. Even in her mouth and scalp. She says that it feels like she has a mint in her mouth and her hair pulled back. She is also getting dizzy this time and unable to walk fast or drive a car. She has muscle strength however, the sensation is making her feel uneven. She is easily tired and sleeps a lot more. We are going through all of the same testing as before but adding an entire spine MRI (Cervical repeat with additional Thoracic and Lumbar). We are also checking for metal toxins, lupus and Lyme. I will check to see if B12 was checked. All hoping that something will show up differently. At this point we want an answer no matter how bad it could be. Something that will allow us to move on with our lives. We can handle it if as long as we know what it is. I hear about stress and anxiety as being triggers. I am hoping that is the case because it seems to be the only answer right now. Right before this second occurrence, she was under some stress, had a cold and had stopped breast feeding. All could be related? but the doctors are not seeing any relation. The pins and needles have not stopped (3 days now) It is good to see that others are having this issue. I was hoping to see someone re-post with a result or update. If anyone out there has any insight, it would be much appreciated. I can be reached at teddsumers@gmail.com

I have given up diet drinks and am taking lots of B12 I will report if it helps.

anonymous
on June 06th, 2007
HI I'm a 25 year old female and I been having numbness since I was about 15 years old. I'm very healthy I have no problems. I just feels so wierd.I can get it in my face and then it goes all through my body and then down my legs It feels so wierd I get scared because I don't know whats wrong with me. I never really told any one about this because they might think i;m nuts or something. I get it ever once in a while I'll start felling numb and then I'll get these bad headache. when I was pregant both times I never got it. I don't know if the prenal vitamins stop it from coming on or not but never got it whwn I was pregant. someone told me it might be restless leg symdrome but,it can't be because i get numbness throughout my body it feels so ugly. someone please help me figure out what these is.

anonymous
on July 23rd, 2007
Aspartame is not good for anybody, It turns into several poisons once in the body. It appears in a lot of things including gum. Cut all aspartame out of your diet and give it a month or so.

pleasehelp
on August 09th, 2007
I have been feeling sick over the past mth & a half. I've been having severe headaches, constipation, constant fevers, nausea, numbness throughout my body, hot sensation feelings running through my body, feeling sleepy all the time eventhough I'm not really tired, I c things which aren't really there, my muscles ache, I feel weak all the time & I just noticed the pink part of my eyes is now white. I did some basic research online. I came across several diseases which might relate 2 the symptoms I've been having. I went 2 the clinic & took a HIV test. Thank GOD it came back negative but 4 some reason I'm staring 2 believe I might have it eventhough it came back negative. I continued 2 feel sick so I decided 2 go 2 the emergency room. I was there 4 5 hrs & all the doctor could tell me was I had a yeast infection. The symptoms I've been having has nothing 2 do with a yeast infection at all. I'm very scared right now. I don't know what 2 do about this situation. NO matter how many times I go to the clinic, I will always be told that its nothing wrong with me. I've never felt this way. It is a terrifying feeling 2 go through something like this. If n e 1 has some advice, please reply to this message. Thank You!!

anonymous
on August 19th, 2007
I am a healthy 30 year-old male. I have been feeling numbness in my left side of my body including my left side of my brain. It has been like this for the last year. I am hypothyroid, and I did check my thyroid level which was fine. I think that this numbness started with me getting into drinking a lot when I went out. I do feel more numbness in the morning as soon as I wake up and my brain starts functioning. I also think it is from life stress. If you have any answers please contact me. toreccelli@yahoo.com

anonymous
on September 27th, 2007
Well, me too. I'm a 38 year old female. This started with a vicious headache in the back of my neck 3 weeks ago, then moved into the right side of my face within 15 minutes. Then the right side of my jaw became paralyzed. Then into my right arm. All of this was a numbness that felt like being on Novicaine. (Spell?) Anyway, my doctor determined that it might be Bells Palsy and sent me home. I stayed exhausted and numb. Two days later the entire left side of my body went numb with the paralysis in my jaw, left side this time. Since then, I can feel the bad episodes coming on by the headache feeling in the back of my neck, then the numbness through out. Usually just one side at a time. It's painful at times and very frustrating. I have muscle control, cognitive abilities, and feeling, but it is like feeling everything through a blanket or protective suit, though I don't feel protected. (The ghost feeling.) I'm scaird. I've been to the ER and quite a few doctors, including a Neurologist. He was a total jerk and told me I was just stressed and this was probably depression. I think that was his way of explaining that he had no idea what was wrong and thought it was in my head. Other doctors have so far ruled out Migraines, Stroke, Diabetes, High Blood Pressure and all the other regular things. I'm calling tomorrow to set up the MRI. At first I was scaird to death that it was MS, but when I thought of things like brain tumors, that wasn't so bad. I hope they can figure out what is wrong with us. I'll post again when I know something. I'm glad I found this site, even though we've got something wrong, we're in this together now. Good Luck everyone.
Kim

anonymous
on October 03rd, 2007
I have many of the above symptoms. Been for all sorts of tests. Waiting for a neck MRI. I cant believe how many people who are experiencing this. It is so frustrating not being able to find the cause.

anonymous
on October 17th, 2007
I have numbness/tingling in both my feet and legs all the way up to my buttocks, my GP diagnosed sicatica. Since this time however the numbness and tingling has migrated upwards (still affecting my feet/legs & buttocks) but also my belly, breasts and back (to shoulder level. I gave up smoking two months ago and otherwise I am in good health. I am a 45 year old female. I am not convinced it is sciatica as little or no back pain

anonymous
on October 18th, 2007
i have underactive thyroid was diagnosed over 3 years ago and put on thyroxin,in the last few days my left foot went dead,i could not walk on it as it felt massive,it has now spread up my arm and now into my hand and my little finger and the wedding finger,then by midday my lips and side of my face are also numb and pins and needles sensations,all on the left side!it really feels awful im debating to seek advice or sit it out and wait to see what happens,it is reasureing that there are others out there with the same thing
cam i also mention i had my thyroid checked 2 weeks ago and it is stable with thyroxin so i know it has not turned eratic, i will keep you informed on my progress,if there is any one out there wanting to know personal symptoms of underactive thyroid feel free to contact me i will help where i can
donnamariejackson@msn.com
thaks donna x

anonymous
on October 25th, 2007
OMG, i have had numbness feeling on my right side..it started with just a patch of numbness and tingling in my left upper back and then it moved to my right upper back, than all the way to my right leg and arm and buttock and tummy....it's scaring me so much i'm going to see my family doctor at 2 pm today....wish me luck!

anonymous
on October 26th, 2007
Hi,
This is Kim, I wrote in on Sept 27th. I'm still experiencing all of this. Everyday there is some point in my body numb and painful. I get headaches sometimes that are in the neck, back of the head, or forehead. They hurt, but are still undiognosed. I have been through every test possible now. My doctor wants to send me to another Neurologist. After the last time I'm not sure I want to, and after seeing that more people are writing in with this, I'm not sure anyone is going to find anything wrong.
I think that we all need to somehow get together and go over what we have in common. Our backgrounds, physical similarities, lifestyles, etc. We should also be able to contact each other if one of us does find a diagnosis, so we can tell the others what to let their doctors know. Or I wish... oh, well.
If anyone finds anything out, I have this e-mail address that I use for health stuff:
KimsThinkingThin@hotmail.com
Good Luck Everyone,
Kim

anonymous
on October 26th, 2007
Hi Kim...I agree with you, i posted on Oct 25th...So i went to see my Family doctor yesterday...i passed every test from coordination to balance and reflexes so he's testing my blood counts and a whole bunch of other blood tests plus he's sending me for a CT Scan...I'm so scared...he said the cat scan won't be until end of november...so i don't think he was too too concerned....he said that he knows for sure there's nothing wrong in my brain but just being cautiaus..
he also asked me if i had been near any chemicals etc...well, i said no to him but on the way home i was thinking about how much i'm taking aspartame in the form of Diet coke and Splenda (about 6 packets a day)so from today i'm stopping all forms of artificial sweetners to see if that makes a difference???? I'll keep you guys posted!

anonymous
on October 27th, 2007
i am not sure what country everyone is from here, about not having insurance?? whats that about?? to see a doctor and costing so much, i feel for you all then. Im from australia and the doctor only costs us 40$ a visit and you get 25$ back from medicare so it only really cost 15$ i dont know how that works out in pounds. I really dont understand why some countries have a crappy health system. What ever happened to taking care of the ill and injuried, seems some countries want the money instead of helping out their fellow people.... Move to Australia, we have a great health system here........... THE GIRL FROM DOWNUNDER>>>>>>>>>>

anonymous
on October 29th, 2007
I'm a 34 female and have been noticing that I go numb on my left side. Arm, leg, back and etc. Just the left side, but it's only when I get on my computer at work.

anonymous
on October 29th, 2007
I have this numbness on my right side. It's worst in the morning and stress situations..if i have to go to work my god it just kills me with feeling so weirded out...i'm a 32 year old female living in vancouver..i have an 8 year old son.

anonymous
on October 30th, 2007
lately i have been having constant headaches almost 2 weeks straight dr put me on antiflammitories, they didnt work, and i forgot to tell her that i also had numbness on my right side of my face and now my tongue is as well. She sent me straight to have test done and it came back that i have a brain tumor.......... So guys dont stuff around get looked at as soon as possible. Numbness on the face aint something the piss fart around with..............GO GET IT CHECKED OUT ASAP

anonymous
on October 30th, 2007
above message was mine, i am only 35 years old......

anonymous
on October 30th, 2007
I'm so sorry to hear about your situation. Thank god you caught it early on time and you will def be okay. At least you know now what you're dealing with... We will all pray for you! How are the prognosis? my blood test came out normal but i'm due for a cat scan on the 8th. and the numbness is on my right side but not in my face...it's mostly from my back to lower extremeties....

anonymous
on November 01st, 2007
Kim here again. Healthcare neglected country is the big bad U.S.A. Of course they don't spend money to keep their citizens healthy, that would take away from their over-inflated economy and might cause less bankruptcies in this country. Then the lawyers would be out of jobs and the politicians wouldn't have problems to solve.
I'm very sorry to the person with the brain tumor. You are in our thoughts, and we wish you the best.
To everyone else, please e-mail this address and lets get our stories and individual sypmtoms and backgrounds into the Mayo clinic or something. I will not post e-mail addresses to everyone. Create an e-mail address that is just for this issue. I'm not a computer hacker so will not be able to trace you...I'm just a mom who wants to be capable and able to live the rest of my life and be active with my son.
I'm sure each of us have our reasons for wanting a resolution to our scare, so lets be proactive.
I know you wouldn't want personal info posted here, but if it is e-mailed in, I can create a chart that we can each look at to see what we have in common or different, and see what might be relevant.
Some issues to look at would be weight, sex, age, health issues, part of the country you live in (N,S,E,W,)type of work involved in, etc. Anything you think might be a possible factor. Also look at early symptoms that you might not have thought too much about before, but now that this has happened???
KimsThinkingThin@hotmail.com
Here's the e-mail I have. I create it but never used it, but now I have a reason to. Let's get together on this; there's power in numbers.

anonymous
on November 02nd, 2007
Hello, I have been having a floppy, tingling feeling all over the left side of my body, the tingling being mainly in my face, arm and leg. I saw doctor today and he said it was the antibiotics I am on, a side effect... does this sound right to you guys?
Because I've never heard of antibiotics doing this in particular...its kind of scaring me. please I need a second opinion.. Ive also had a lot of stress the last three weeks. Thoughts?

anonymous
on November 02nd, 2007
Hi, i'm having the same feeling only on my right side...face, arm and leg....and i'm not on antibiotics...doctor ordered blood test for diabetes and thyroid and cbc/magnesium/k/na etc...all came normal...i'm scheduled for a ct scan next week...i'm so scared...

anonymous
on November 05th, 2007
me again w/ antibiotics, I saw another doctor and I'm getting a ct scan today or tomorrow not sure yet. I'm kind of worried.. but have a feeling its something else, not sure why. but I'll see.

anonymous
on November 05th, 2007
Good Luck Everyone.
All my test results are all negative for problems, MRI, CT Scan, Blood work, etc. Nothing more to test. Folled up again with my Dr. this week and she said maybe I should see a shrink in case I'm stressed from this. Ha! I'm only stressed when it paralyzes me, but then I know I'll get feeling back and just stay calm, no stress except that there is no answer. I want to send all this in to Mayo Clinic or something, but we need to somehow get together on this.
Suggestions or anything???
Kim

anonymous
on November 05th, 2007
Kim i'm so glad tests came out normal...i'm still waiting for my ct scan on thursday and still scared!!!

anonymous
on November 06th, 2007
Kim: its a good thing tests came out normal, even though it didnt give you an answer. Hmm.
I'm getting my CT scan today. I'm a bit nervous. I have given up on the theory it was from antibiotics hehe.

anonymous
on November 06th, 2007
I'm getting my ct scan on Thursday....good look to the above post and please wish me luck for thursday too....i'm sooo scared...

anonymous
on November 06th, 2007
Thi swas a lot of help to me. I am 18 yrs old and about 1 week ago i got a funny tingling feeling in my left side fo my abdomen and it hasnt gone away yet! Then about two days ago it spread down my left thigh and close to my knee. Today i felt a bit quesy and i layed down and the numbness relaxed a little bit and now it is just my left abdomen and around the top of my thigh. I made a doctors appt. for this coming up tuesday to get a physical and i plan on asking them about this symptom. Hopefully it all goes good. I mean i dont do drugs and im in pretty decent health im not obese or ne thing and the only negative thing about me is that i smoke. Ive been smoking about 1 yr or so but i dont see how that could be related to the tingling sensation. If you know ne thing then let me know. My e-mail is Thscountrygal@yahoo.com

anonymous
on November 09th, 2007
I also had this in the past three days. My left cheek; and my gums are swollen. I had a sharp once in a while headache the past two days. I went to the doctor today and he said it is migraine. I have been working too hard the past month and I think it could be stress related.

anonymous
on November 09th, 2007
Well i had my ct scan last night and called my doc today and he said the results aren't in yet...wont' come in till next week......so i have to worry for the weekend till tuesday......

anonymous
on November 11th, 2007
It seems everyone's CT scans are coming back normal, so we don't have to worry about anything in the known world so far. Good luck to everyone who does not have results back yet.
It does NOT appear that most of us have brain tumors, MS, or even migraines, so I guess we can count ourselves lucky in that area. Myself, I'm mostly functioning. It's just painful sometimes and exhausing, and very worrying. I just broke down and cried the other day, but mostly I'm able to cope. I hope everyone else is coping o.k. also. Everyone keep researching. I am. I think my doctor has even given up now. She told me to see a counselor in helping to deal with it????? I want an answer, not a therapist. I want to not have to worry if I'm going to go paralyzed over night, or have my brain go numb. I want to... well, I guess I'll count the ways I'm lucky so far, and not complain.
Kim

anonymous
on November 14th, 2007
I just got a call from my dr office and my ct results are back and it's normal....so i'm seeing my dr on monday to purue other tests and see what can be done for this numbness and all...i had a dream last night that my sister told me my dr gave her my test results and i had brain cancer....i was so scared...

anonymous
on November 14th, 2007
mine started with an odd feeling on the left side of my bottom jaw. went to dentist even though no teeth were hurting. he took xrays and did an occussical adjustment. there was some inflamation in one cap area of which he administered some liquid antibiotics.
two days later, i still feel a weird sensation in my lower jaw and today my left hand and foot went to sleep for awhile? my left hand feels weird?
any suggestions?

anonymous
on November 16th, 2007
I discovered the body numbness blog the other day. I have many of the same symptoms. They started 2 months ago in earnest, maybe a bit longer starting with numbness in my hands at night. I have no pain or weakness, just the numbness that moves around from both left and right extremities to upper back. I too have been to many doctors, chiropractors, acupunturist, etc. had CT scans, blood work and nerve conduction studies.
My symptoms seem to get better with activity, worse when I am sleeping, driving, sitting around or stressed.
The latest test result is that I have a B-12 deficiency. The neurologist said that any level below 500 can cause the numbness symptoms(mine is 400.) He said that it is not a matter of diet, but absorption in the body. Pills don't help, you need injections which I have started. He also said that I have some nerve damage from this, but that this should resolve in 3-6 months if the B12 issue is indeed the cause. (Yikes, can I last that long?)
I wish us all luck in finding the cause and relief from our symptoms!

kim4
on November 18th, 2007
Hi everyone. Kim here, from above. I took my 15 year old son in for a physical the other day because he's been complaining of weakness, and other symptoms that I've seemed to have had over the past couple of years that I've realized are related to this numbness issue. I was starting to wonder if what he and I have are related in some way. Well...I didn't tell his doctor about me and guess what...he wants to test my son for MS. Same as most of us. So then I told him about my symptoms and he said his first guess would be MS also. He's wishing us luck and sending my son in for an MRI, CT scan, and Spinal Tap. Ouch.
This is not right. We need some kind of answer. I don't want my son to have to go through all this testing also, just to find no diagnosis.
Good Luck everyone
Kim

anonymous
on November 22nd, 2007
The weed thing is all about mental. If you feel the numbness the next day I believe it's caused by yourself. It happened to me just today, I started to IMAGINE what the numbness was like and now guess what, it won't go away. It's strange, like I rub my hands together and they feel like they melt and vibrate and tingle. I would also perhaps like some thoughts on this?

anonymous
on November 22nd, 2007
Hi, my daughter, who is 22 years old, started going numb about 3 weeks ago. She is now numb from the waist down and her hands and right arm and sometimes her right side of the face. We did all the tests (3MRIs, tons of blood work) and all are normal. Her torso feels like she has a corset on. She has been diagnosed with Transverse Myelitis. Please research this in Google. It may help some of you. God bless

anonymous
on November 25th, 2007
I started reading this blog and am astonished, I felt alone, Not anymore. I am 33 yr old female. 10 years ago right side of my body went numb. I was sent to a neurologist who diagnosed me with MS w/out tests in his office. He then sent me for MRI and spinal tap all came back negative, so no MS. Then I went partially blind in right eye due to inflammation but the Dr's dont know why. They sent me to Duke University, no idea from them. In 2005 I woke up one morning and could not hear out of my left ear. Went to another neurologist, MRI's, spinal tap all negative. I went to Johns Hopkins Medical Center, they said well we cant tell you if you'll go completely blind or deaf we'll have to wait and see. Two weeks ago the left side of my body is numb and still. Going to neurologist again. I'm sure they'll put me thru the same tests. I am going to google all the items i read about today. But you would think that the specialist i went to would have some idea especially since i see i'm not the only one with these symptoms. Good luck to everyone and God Bless.
Amy

anonymous
on December 03rd, 2007
I am a 63 yr old female. . . left side started tingling & going numb early Sept. Two days before I had a vision problem and was lightheaded - I have since had Blood pressure all over the place and have been hospitalized with shortness of breath and general feeling of being sick. Had MRI (twice) echo on neck and eyes, CAT scan, EEG/EKG - many blood tests and most recently an MRA (still awaiting results). Tingling, numbness there every day to some degree - so is the feeling I'm about to faint. SCARES ME. So far tests have not found "anything." Here it is 3months later and I am still sick. any comments. Dr. suggested anxiety, but I do not feel anxious (just sick of being sick). Sylvia

anonymous
on December 05th, 2007
Hi Frost,
I have a question...did you ever experience facial numbness anywhere? Thank you!!!!
Melissa

kim4
on December 08th, 2007
Frost has not written in over a year.

anonymous
on December 09th, 2007
Hi all - im a 30 year old male - and like other people on this blog have funny numbness in my left side feels like my body falls asleep its been going on for about 2 weeks - i have blood test which all came back fine i have just been for a head MRI and awaiting the result which im very nervous about which seems the be making me worst - but i will post with the results and i have taking some confort from everyone else on here with the same issues - i have recently given up all diet drinks i started to notice wierd feelings from drinking fo mush diet coke so i googled it which came back with loads of people experiencing the same problem - Im hoping its not MS or andything even more serious fingers crossed - regards

anonymous
on December 20th, 2007
Hi - I'm a 43 year old female experiencing body numbness on my left side (face, arm and leg) daily since August; no pain, though sometimes I can feel lightheaded. I too did all the tests - numerous blood tests, MRI, CAT, - all came back fine. Stumped the neurologist, though I stopped with his recommendation for a spinal tap since my symptoms hadn't been worsening.
I've been trying acupuncture and have beefed up on my vitamins and exercise - I am hopeful this will help with time as I believe that a positive mind frame and being active in securing my health is always the base of healing. I reassure myself that my body knows how to be healthy, and somehow the balance tipped and this symptom emerged, and I can return to my previous, if not improved state of health. I wish that positive mental attitude could be the same as magic, but it's no quick cure. And I don't want to be a fool and ignore symptoms that may be early warning signs of a serious underlying condition. For this reason I would encourage everyone to seek ongoing medical consultation, as the same symptoms in 2 different people could be 2 different causes. I plan to make my rounds with my doctors again in January...
What I'd like to ask is - has anyone who shares these symptoms been diagnosed with Mitral Valve Prolapse? It's a "benign" heart condition in which the mitral valve in the heart collapses instead of the normal valve closing function - it results in heart palpitations and irregular heart beats. The reason I ask is that I was diagnosed with it in
august as I was experiencing heart symptoms, and the numbness presented simultaneously. Numbness in extremities (though not one sided numbness) is a common symptom of MVP. My cardiologist thought that "gummed up platelet clumps" may have been the cause of my numbness, however taking a daily baby aspirin as a blood thinner has not effected my numbness.
Wishes of improved health to all, and peace -
Thanks, Lisa

anonymous
on January 05th, 2008
Hi, a friend of mine, who i had just visited in hospital experienced numbness while she was in work. It is the 4th day and her entire left side of her body is still numb. the doctors say that this is because she does not dry her hair properly in the mornings which caused a chill in her roots and scalp straight into her brain. she should be ok hopefully but if you are also not drying your hair properly, escpecially in cold weather in london here, then it is a possibility that that is the problem

anonymous
on January 05th, 2008
Hi, I have experienced the same symptoms that most of you have for most of my life. I am a 42 yo women. The 1st time I experienced the left sided numbness and headache was when I was 17. I have had other unusual symptoms like my pupils dialating and contracting irratically and my tongue and extremities having the sensation that they are swollen to twice their size, although when I look in the mirror they are perfectly normal. I thought that I was having a stroke. I have had extensive testing through out the years, heart, neurological, spinal tap, mri,cat scans you name it, but I have never been given an explanation. I eventually took things into my own hands. First, I discovered that by cutting out caffein I have dramatically lessened my symptoms. I have also noticed that chinese food has often caused an episode. I started practicing yoga and simple meditation and breathing exercises which helps deal with the anxiety that occurs with the symptoms. I still get the numbness and headaches but it is much less often and does not last as long. i too as someone else mentioned, did not have any symptoms during my pregnancy.
Good luck to everyone, I know how much this can effect your quality of life. T.

anonymous
on January 10th, 2008
Hi I am delighted to read about so many other people who are experiencing numbness because I thought I was the only one. I have had body numbness from mid chest to my toes and now my hands feel numb too. I too have had blood tests done and all came back negative and I am now awaiting an MRI/CT scan with a neurologist. I have had my symptoms for 3 weeks now and my back and neck is starting to give me some problems now and quite painful. I am considering a herbalist as I don't have much faith that anything will show up in the scans. I work at a computer all day and I'm convinced that perhaps this has something to do with it. I would welcome any other ideas anyone might have. My email address is: magill81@hotmail.co.uk

anonymous
on January 11th, 2008
Hi ihave been experiencing right sided headaches for about 6 weeks and for the last 2 wekks total left sided numbnes and tingling sometimes only facial then arm then feet im scared as hell have a neurologist appt on the 25th the scary thing is i work on a neurosurgical unit as a nurse and it is really stressing me out as my symptoms are typical of some of their diagnosis

anonymous
on January 13th, 2008
5 days ago my right leg started cramping, more like a dull ache. The next day, my knee was swelling and it seemed like veins were popping out. My Dr. sent me to get an ultrasound to check for a blood clot, but there was no clot.
That night, I began feeling "pops" in my arms and legs (maybe muscle spasms?), then when I laid down in the bed I immediately became numb and tingly on my entire left side, foot to face. Went back to the Dr., and now he wants me to have an MRI to test for MS.
Tonight, my neck got really stiff, and my head started hurting across the back/base of my head, and my ENTIRE head went numb and tingly.
Around 6 years ago, I had an episode in both arms/wrists/upper body where I had shooting pains and numbness/tingling all the way up to my face. I am a concert pianist, so in addition to the normal doctors, I also went to a hand specialist. They tested me for rheumatoid arthritis, carpal tunnel, and I thought they also ruled out MS. Everything came back negative, so all the doctors just brushed it off as tendonitis. The worst of it went away, but the symptoms never 100% went away.
Now my doctor tells me all that could have been the initial "relapse" of MS. Apparently, in the early stages you can have years between relapses.
My doctor is scheduling an MRI for me ASAP, so I'll post an update.

anonymous
on January 13th, 2008
Please keep updating your test results everyone. I'm keeping a log of what is happening, tests and results, and any pertinent info ya'll give. I'm trying to find specialists who will take all of this seriously. I'll send it in to the Mayo clinic, and possibly research universities when I have finished compiling the info. If you feel comfortable, you can e-mail me at the e-mail I'm using for this situation, and let me a know a general location you live, or physical traits, or employment type. You don't have to be too specific. Use USA Midwest, or Queensland; Obese, or recently had Shingles; Office worker, or Nurse; etc.
Thanks everyone! (And I have no updates...just the horrible headaches this week and my brain feels numb.)
Kim
KimsThinkingThin@hotmail.com

anonymous
on January 23rd, 2008
I am having the same symptoms but its not really like pins and needles it more like one blogger said "it feels like you're going through stuff like a ghost unless you force your hand or foot against that object." Its really freaking me out. It started with my right leg the other day. Now it is both my legs, my hands, my stomach, and sometimes my arms. I also think I'm freaking myself out because sometimes it feels weird to breath..like I have to take a deep breath in. I'm 21 years old and in good health.

anonymous
on January 23rd, 2008
hi my name is mark. some time in sepember i started to feel a numbness at the top of my right toe... i left this for a long time but about 2 weeks ago i was due to go and see my gp. 3 days before i saw the doctor i had to go to hospital for a strange numb type feeling on the right hand side of my head about an inch or so above the top of my ear. I went to the hospital and they took blood tests and done a reactions kind of test and said they couldnt see anything and that it must be to do with stress. I then went to my own doctors for the original appointment he said just to leave it and it should be fine, and that the toe must be something to do with my foot rubbing in my shoes. I dont know what to do as both things are still here. I feel fine in every other way and have had the toe numbness for about 5 months now and the thing in my head for about 3 weeks. does anyone have any idea what i should do or what is wrong with me. Im 18 years of age about 2 stone over weight but besides that no other health problems. thanks, Mark

kim4
on January 25th, 2008
Mark,
So far there is no answer for most of us as to what to do. Some of the people who write in have had this for years. Have your doctors run an MRI to test for Multiple Sclerosis (MS) and also run a B12 vitamin deficiency test. Both of these will cause some of these symptoms.
I'm keeping a chart of the symptoms of each person and any other information they “donate.” Maybe someday we’ll get answers.
Kim.
If you want to volunteer any other symptoms or your stats for the chart, you can e-mail KimsThinkingThin@hotmail.com

anonymous
on January 26th, 2008
OK, I'll try to keep this short. My name is Todd. I had an L$-L5 spinal fusion surgery with rods and cages on Jan 9th. First ten days after surger I had no numbness at all in any part of my body. On day 11 after surgery, my feet and legs went numb. On day 12, my entire body went numb and cold from top of my head, to face, mouth, tongue, lips ears, torso, arms hands, hips, and still in my feet and legs--both sides of my body is completley numb 24x7 for 6 days now.
I went to the ER 3 days ago and had brain CT and MRI, chest xray, and lumbar MRI. Had blood work done. ER docs and radiologists found nothing abnormal in any of the tests. I spoke to my surgeon who did the lumbar fusion and he is baffled. I am seeing him this coming Tuesday. Seeing another neurologist on Wednesday.
My father happens to be in the healthcare field and spoke with one of the top internists in New England who he knows personally. This doctor said he has seen this several times, says it is most likley peripheral nerves freaking out for one reason or another, and most likley not something too serious. He said he has successfully treated patients with these sympoms with tranqualizers, which I assume he menat benzodiazepenes like valium and xanax and klonopin. He said a 3 day treatment usally works to calm down the nerves.
I have read a lot of te material on this website, www.neuropathy.org over the last 2 days--some great info in here to educated ourselves and possible diagnoses. The main complaint that most of the people on that site have though is pain with numbness and burning. I have no pain and no burning, I am just completley numb and feels like I have ice water for blood--I live in FL and I have been freezing cold all week.
Anyway, will update again next week after I meet with my surgeon and a different neurologist. Stay warm all.
Todd

kim4
on January 29th, 2008
Thanks Todd.
I looked at this site, and am now doing more research on peripheral neuropathy. I don't have any more time tonight, but later this week I'll post if I find any pertinent info.
Good luck to you Todd. I hope you warm up soon.
Sincerely,
Kim

anonymous
on January 29th, 2008
Hello my name is Elizabeth. On December 25th, christmas night, I smoked some weed and ended up in the hospital. My heart was racing and I was having shortness of breath. I felt like I was dying like it was my last day on earth. When I got to the ER, they told me that my heart was racing a little and they gave me some adivan which is to calm you down. Now I was a cigarette smoker as well, and so two days later I smoked a cigarette and then ended back in the hospital because i started having the same problem. My heart started racing and i was very shaky. They gave me adivan that night as well to calm me down...I was in the ER a few times after that as well. They didnt know that I had smoked weed that first night when I went into the hospital, and I never did say anything about that. But I ended up going to see a cardiologist after about a week, because I had stopped smoking weed and cigarettes and I am still having symptoms. The cardiologist gave me a prescription for adivan for a week and so I took adivan everyday for a week which I regret because I almost feel like maybe that had a bad affect on me. Anway Ive had catscans done on my brain and chest, I had a holter monitor put on for 24 hours and I had an ultra sound done of my heart and also of my abdomen and kidneys and liver etc...I had Xrays and blood work and everything came out normal. I just had an MRI done yesterday so I am waiting for the results for that. I was also having a lot of gas and bloating. I have the tingling in my chest mostly the left side. I have the tingling in my arms and legs and back. I have this burning sensation that I get on my left back side right under my left shoulder blade. Sometimes when I get that burning sensation it makes me have a panic attack...or shake whatever you wanna call it. The one doctor said that I could possibly have panic disorder. And it is said to be true that weed can cause anxiety. I was going through alot of stress at the time this all started and even before that. I get this really weird numbness and tingling in my left chest. I get pain in my left rib, and pain in my left chest. Sometimes my muscles ache. I was out of work for two weeks because every time id go to work id be so scared that id have a panic attack tha I would end up having chest pain at work and want to be taken to the ER. Its scary I am only 20 years old. I quit smoking and everything. Sometimes when I put a shirt on my left arm feels gets tight. But the shirt isnt even tight. Now my eyes have been dry and the back of my eyes hurt sometimes. My tongue has been very dry as well, but that could be because i burned it with hot coffee. I get tingly feelings in my head as well. Heres a list of ALL my symptoms Ive had since December 25th 2007:
chest pain [left side mostly]
palipitations
leghtheadedness
feeling like im short of breath [even when im not]
left arm pain
burning sensation in left side of back and left arm
burning sensation all over sometime in spurts
numbness in finger tips [i think do to cold hands]
hot flashes
cold flashes
hands and feet get cold even in a warm room
dry mouth [when i wake up every morning]
back pain [left side and lower back]
feeling like i have a lump in my throat
a doom feeling like constant fear and worry
sharp pains in my ribs [left side mostly]
abdomen pain [right and left and middle]
headaches
tingly and numb in face
my forhead gets numb sometimes
runny nose
trembles [mostly in left side wehn im either sitting or lying down on my bed]
trouble sleeping do to fear as well as the tingly and numb feelings
fatigue [alot]
weakness sometimes
muscle soreness
muscle ache
fingers and knuckles hurt [feel like they need to be cracked]
lips get numb
left side of face gets numb
etc...................

anonymous
on January 29th, 2008
Its Elizabeth again...
I also was having some slow motor skills...
if that makes sense

anonymous
on January 29th, 2008
Is anyone still discussing this issue or has this blog got quite? I'm experiencing numbness on the left side of my mouth, gums, the left side of my tongue, as well as my left arm and back. I guess it's not numbness but it's that awful tingling feeling when a part of your body has fallen asleep. I went to the Urgent Care and they thought it may have been for stress. They put me on a medicine that is.....not working! I don't think it's stress. I have an appointment to meet with a Neurologist next week, but it's just a consultation. I'm ready to start testing now because this tingling and numbness is annoying. What could this possibly be?

anonymous
on January 29th, 2008
what was the medicine you have been taking that did not work and how long have you been on it?

anonymous
on January 29th, 2008
Hey its Mark. thanks alot Kim for the advise i think i will go to the doctor and ask again and say about the test which people have been telling me. I am still having the same symptoms so i will write back when i go to the doctors.

anonymous
on January 29th, 2008
Hi back again. I just wondered how long any of you had to wait on an MRI/CT scan. I have been waiting for 4 weeks now and still have not received an appointment. I still have my numbness and it has now spread to my right arm so the only part of me that is not numb is from my shoulders up and also my left arm.

anonymous
on January 31st, 2008
This numbness thing is more common than i thought. Started having slight numbness on rt. side arm, below ribs. Going on now for 4-5 days. Didn't think much about it at first, but now i realize it wasnt the way i was sitting. I just turned 39. No children. I am a diabetic, since age 9. Of course when people hear this word they want to blame my problems on that. Ive not had any complications from diabetes, 1 eye sx. Kidneys and all are fine, not overweight. No high chol. or bl. pressure. Going to the Dr. in the morning. Just for my regular check up, but now i will add to the list of things for my dr. to check. I really never knew this was so common. Have been stressed lately. My father passed 3 yrs ago with dx of ALS. So of course im wondering about that. We will see what happens, maybe i can compare symptoms and results with someone and help out.
